The program has helped my son in his development. He is not the child he once was. His therapist has been very patient and worked well with both me and my son.
We would like to publish inspiring stories about families and children served by PCDA. These stories may be shared in a booklet, our annual report, and in other publicity.
If you would be interested in participating in this project, we will have someone contact you to set up a time to talk. We also need your consent to publish and distribute your story, along with a few photographs. So please click on the consent form below, fill it out and fax it to PCDA at (626) 793-7341. Thank you!
Things did not turn out
as perfectly as we had hoped. When
from the womb, there he was
a twisted pretzel of
a person, this child
who was to be perfect,
shaking and bloody
as a wounded bird and
not much different:
from the bony shoulders,
like broken wings, crooked
arms splayed up to the curled hands
that seemed jammed
under a quivering chin attached,
haphazardly, to a crooked head.
a withered torso,
up the sides of a pruney chest-
all these deformities
from blood that had
clotted on the brain:
a stroke. So,
of the elderly became
his personal anomaly.
Blood soaked, crooked,
this was how we greeted
from those bodily barricades
and out of that
a boy who
did not interrupt a family,
did not join a family,
created a family.
My name is Sosie. I am a mother of two autistic children with many challenges. My older son, Emmanuel is 10 years old, and the youngest just turn 5. It is a pleasure to share my personal story about my children's feeding problem, and how I received assistance from PCDA.
My younger son seems to be the one with the most need with feeding. Since he approached the feeding age, I discovered that he would not eat any kind of solid food. The only food he can eat was drinking soymilk as many times as he can during the day and night.
My son's doctor prescribed nutritious milk called Pediasure to enable my son to get the necessary vitamins and proteins. I was happy he was at least drinking the Pediasure, eat French fries, and crackers. However, I was still unsatisfied about my son's feeding situation. One lucky day, I went to PCDA in the city of Pasadena after I was sent by the Regional Center. I met wonderful, kind people who were listening to my children's problems. After a series of tests and advises, a talented therapist Ms. Erin began systematically and patiently introducing my children to different kinds of foods.
At the beginning it almost seems comical. It seems that the children are playing food game. I learned that the children are unknowingly licking, touching, and smelling the food. Immediately I began to observe some changes in my children's eating habits. They began to try different kinds of foods, fruits, and cereals. Within a year time both my children started to eat different foods...such as pan cakes, waffles, fruit (apples, grapes, oranges, tangerines, peaches) and different types of whole wheat cereals and crackers. After a year of driving from LA to Pasadena once a week, I fell ill. To my disappointment, I was unable to drive to Pasadena. However, PCDA arranged a schedule to come to my home and continue the treatment service under Ms. Grace. Ms. Grace was an amazing therapist. She made my children comfortable and at ease, and they responded to her directions very well.
Now, it is a pleasure to inform you that my older son has exited the program because he is able to try all kinds of food. My younger son has recently started to eat sliced turkey, chicken nuggets, pretzels with yogurt, and fish sticks. Still continuously improving with his eating habits. PCDA feeding therapist Ms. Erin and Ms. Grace were talented therapist under the knowledgeable guidance dietitian Ms. Karen. PCDA is still extending their assistance patiently, and systematically, and my son is still improving.
I am so grateful to PCDA director, PCDA assessors, to the staff, and especially to the feeding therapist Ms. Grace and the dietitian Ms. Karen who is always there to come up with new ideas and feeding techniques for both my sons with patience and dedication.
Finally, I would like to inform all parents with children with feeding problems, to follow the advise and instructions of the therapists strictly, and to make sure to practice all the techniques independently at home. For example, the first time when the therapist show you touching, kissing, smelling, and licking the food it looks like they are playing and unimportant. However, if you practice the technique independently at home you will see improvement.
All of my son's therapies are through PCDA because I appreciate their philosophy that includes family involvement, The FloortimeTM Approach and their collaboration amongst varying disciplines that allow for building on his growing abilities. The therapists at PCDA have exceeded my expectations and continue to amaze me by going to great lengths to ensure Luca's progress.Jennie Rousset